Thursday, October 23, 2008

Two Posts In One Month! Wow!

Two posts in one month - what's the world coming to? Yes, I know it is rare that I post very often these days, but I have something to share today. Last night our family had the most amazing experience. What could it be you say on a Wednesday in the middle of October? Well, we arrived at church last night and saw a swarm of people wearing red t-shirts lining the walkway into the entrance of our church. Immediately the boys starting asking, "Who are all those people? Is there a party?" Harrison actually asked, "Is it my birthday party?" We had to say, "No Harrison, remember your birthday is in February. IT IS ONLY OCTOBER!" But, you can't blame a boy for wishing I guess.

Wishes. Hmmm. A while back I had a post about Nathan's night serving ice cream for the Make-A-Wish foundation. But, I didn't actually tell you his wish. He wished to go to Disney World at Christmas. Those of you who know Nathan know that he absolutely loves Christmas. As soon as we take down the pumpkins, he will start thinking about decorating his room and his own special Christmas tree. I can't think of a more fun time for him to go to Disney World. So after we saw this big group of people at church, guess who else we saw?

If you guessed Mickey Mouse, you're right! Mickey Mouse comes walking out into the parking lot to give Nathan a big hug. Yep, it seems that Nathan's wish is coming true thanks to the Make-A-Wish foundation and the girls of Chi Omega Sorority at Samford University. These amazing young women are sponsoring his trip. I have gotten to know several of the girls personally this year and I have been blessed to know them and work with them. They threw us a party, complete with surprises for all the boys, mickey mouse ears, dinner, treats, and a very talented man who made balloon creations, including the best goofy, mickey and pluto ever! We also had all of our family there with us as well of some of our very best friends. We were also surrounded by our wonderful church family who has supported us all along the way of our journey with Nathan. I can't imagine a more special place to have received this gift.

Needless to say, the boys are on cloud 9. Getting to bed last night was almost impossible. I did have to explain to Andrew that the trip is a few weeks away. I think he might have thought we were leaving last night! So now we will start counting down the days. Disney World here we come!

Did I tell you how incredibly humbled and blessed we feel? It really feels strange to be going on a trip that someone else has provided for us. But I am so happy and proud for Nathan. Looking at him now, you would never know what he has been through over the past year and a half. I know others have been through so much more. But he has endured 8 hospitalizations, one huge transplant surgery, 2 liver biopsies, many outpatient procedures, I can't even count the number of physician and clinic visits and blood draws. I hope much of the hard stuff is behind us. I feel almost certain it is. Nathan is now living a full and normal life. He is doing normal 7 year old things like playing soccer, attending 2nd grade and playing with his puppy, Sunny Dog. But I think of this trip as a reward for him for all that he has been through, helping him to make happy memories from an experience that hasn't been so much fun for a little boy. I know that he will have an amazing time. I think the boys are perfect ages (9, 7, 4) to remember this trip forever. They will also remember the incredible generosity of a wonderful group of women at Samford Unviersity. They will remember the love and support of their church family and their grandparents, aunts, uncles and friends. At times it is hard to fathom the generosity of others. During the most difficult life events the love, support and care of others is abundantly evident. So with grateful hearts we say, THANK YOU CHI OMEGA, THANK YOU MAKE-A-WISH, THANK YOU LIBERTY PARK BAPTIST CHURCH. We love you all and can't wait to share memories of our trip with you.

Blessings,
Lora

Thursday, October 16, 2008

Blessings

I thought I would share a story with you from this week. On Tuesday night I had the opportunity to go to the UAB Townhouse apartments and visit with some of the families that are staying there. Since I first heard about this ministry a while back I have wanted to take part. The Medical Apartment Ministry is a service provided by the Birmingham Baptist Association. The apartments are for patients and families who are receiving medical care in the Birmingham area but who live out of town. I had heard that there were many transplant recipients and those waiting for transplants who are staying there. I know that there are others as well who are receiving long term care of some sort, whether it is cancer treatment or something else. I feel that our family has been so blessed to have Nathan's transplant here in Birmingham. This has allowed us to stay in our own home near our families and support system. We have been able to continue working and really to live our lives rather normally. But many folks, particularly those who may experience complications post transplant or those who need to be near the hospital in order to wait on transplant, have to pick up their lives and leave their family, friends, church family, jobs. I can only imagine how hard that must be. So long story short, I wanted to visit with them and maybe offer encouragement to someone.

As I sat down to eat dinner, the man sitting next to me asked, "Are you a recipient or family member?" It caught me off guard a little bit because my plan wasn't really to talk too much about myself and our story. So I proceeded, "Well, I am here with.....but I am a family member of a recipient. How about you?" This wonderful man and his wife then proceeded to tell me about their son who died unexpectedly 2 years ago at the age of 18 from a brain aneurysm. He then went on to tell me about how his son was an organ donor and he was so proud and honored. You may be thinking, "Well why was he there?" because I was thinking the same thing. This mom and dad were there to support the recipient of their son's heart who has been staying at the apartments since her transplant almost 2 years ago. Can you imagine? They have also met the recipient of their son's lungs, pancreas, liver and one of the kidneys.

Now for another part of the story. I have wanted to write Nathan's donor family. Many of you know his donor was a 16 year old boy who died on Christmas day. I have thought about what to say. I have pondered over it. There are so many emotions. For one, it is almost impossible to express our extreme gratitude. Our gratitude for the gift of life. The gift that saved Nathan's life. Think yourselves for a minute about trying to put that into words. It is no easy task! Aside from our relationship with our heavenly Father I can think of no greater gift. On another note, there are also thoughts about how the family might perceive the letter. Will they be happy to hear from you? Have they been waiting? Will it bring back sad memories for them? Will it be hard for them to hear about how well my son is doing? Or, will it bring them peace? Will they feel a sense of pride and joy that their son brought life to someone else?

Last Friday night I sat down on the couch and decided to just write from my heart. Stephen was gone and the boys were busy and I decided it was time. So I wrote and I cried as I remembered the day he received his new liver and a new chapter of his life began. I cried as I thought about this family whom I don't know, and whom I may never know, who so unselfishly gave. And then when I was almost done, Nathan asked what I was doing. I told him I was writing the family who gave him his new liver. He wanted to write a letter also. He got some paper and in his 7 year old, second grade writing he wrote the sweetest few sentences. He was so excited to write and he knew what he wanted to say. We talked about buying some pretty paper to rewrite it on and then mailing our letters together. On Saturday, he couldn't wait to go to the store and pick out stationary to rewrite his letter on. But, even after all of that I still wasn't sure about mailing it just yet.

Back to Tuesday night.......This father shared with me about how much it meant to them to hear from the donor families. They wanted to know what the recipients were doing. They wanted to know that they were doing well and that they were well cared for. He said they have found all of the recipients but one and he said it is his mission to find that person. He also talked about how he felt he had found his calling in life sharing with others about organ donation. He speaks at local hospitals. He talked about how he was never much of a public speaker, but he can now get up and speak about his son and about how donation has been such a blessing for his family as well as those who receive the life saving transplant. I felt so humbled to sit next to this family. It was as if I could have been sitting next to Nathan's donor family. As I left I thanked him for helping me. He hugged me and told me to mail my letter that the family was waiting to hear from me.

I have to say I feel like God was speaking to me Tuesday night. It's funny, I thought I might be offering encouragement to someone else, but I think I am the one who came away extremely encouraged and blessed. I was reminded that we are never placed anywhere by accident. God always goes before us and has a plan for us in each and every situation. I am so thankful for this family. Please pray for them and for the many others who are staying in the apartments. Many are healing and have had very long journeys and still face long journeys ahead. There are 2 who are waiting on transplants now - one for a heart and one for a lung. Within the room I could tell that there was such hope but also hearts that were hurting and in constant anticipation of an unknown future. I know a little about that. It is a very hard place to be. Of course none of us know our future from one day to the next but I think you probably know what I mean. Our journey to transplant was short but for others it has been years in the making. They need our prayers.

Pray for Nathan's donor family as well. I often wonder how they are. Our lives are getting back to normal now. I wonder are theirs? Join me in lifting them up in prayer today.

Blessings,
Lora